The project

rationale

Rationale

PD patients are evaluated by their treating clinician in face-to-face visits infrequently, on average twice a year. These visits are typically short and even experienced clinicians may not consider all symptoms.

Within a few years, it is expected that most PD patients will use an individual EHR and interoperable and substitutable technology (including wearables) that can interact with this EHR.

Smartphones, wearables are already useful means of patient empowerment anyway, since they promote health literacy and activate patients manage their condition leading to an improved quality of life.

objectives

Objectives

Design and evaluate an EHR-agnostic, Clinical Decision Support System (CDSS) for personalized medicine approaches in the management of Parkinson’s disease (PD)

Complement symptomatic treatment by:

  • adopting a holistic strategy according to the personalized medicine principles, which takes into account genes, clinical subtypes, neuroimaging, personality and beliefs, biological aging, co-morbidities etc.
  • passive (with IoT devices) monitoring and objective evaluation of motor symptoms
  • active (with e-diaries) monitoring of lifestyle and non motor symptoms (patient reported outcome measures – PROMs)

Objectives

Design and evaluate an EHR-agnostic, Clinical Decision Support System (CDSS) for personalized medicine approaches in the management of Parkinson’s disease (PD)

Complement symptomatic treatment by:

  • adopting a holistic strategy according to the personalized medicine principles, which takes into account genes, clinical subtypes, neuroimaging, personality and beliefs, biological aging, co-morbidities etc.
  • passive (with IoT devices) monitoring and objective evaluation of motor symptoms
  • active (with e-diaries) monitoring of lifestyle and non motor symptoms (patient reported outcome measures – PROMs)
objectives
Scenarios and utility

Scenarios and Utility

  • Poor historian
  • Non-Motor Aspects of Experiences of Daily Living
  • Motor Aspects of Experiences of Daily Living
  • Motor fluctuations
  • Gait disorders
  • Dyskinesia
  • Tremor
  • Dyskinesia vs. Tremor
  • Response to therapy change
  • Assessment for and optimization of advanced therapies
  • Telemedicine
  • New patients
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Αντίθεση